Thank you for taking part in our survey about the new classification of chronic pain. This survey is supported by the Pain Alliance Europe (PAE).
You may have heard that the World Health Organization has published a new edition of the International Classification of Diseases (ICD-11). As a part of this, they have worked to improve the diagnoses of chronic pain. This new version of the ICD has not been implemented, yet. Each country still needs to decide whether it wants to use the ICD-11. Then, the next step will be the implementation and its use by doctors.
The aim of this survey is to learn more about your views on the new diagnostic classification. What do you expect of it? Do you think it will be helpful? Will it make it easier to speak to your doctor or other people about your pain? To understand your views better, we also would like to hear a bit about your pain and your experiences with it.
What will be asked in the survey? (Procedure)
Taking part in this survey will take about 15 minutes. First, we will ask you about your person (your age, whether you are male or female) and your pain. Then, we will show you a brief information video about the new classification of chronic pain. It explains what is new and how it will affect you. The video will last 7 minutes. Afterwards, we will ask some questions about your views on the new classification.
Who can take part in the survey? (Eligibility)
You can take part in this survey if you are at least 18 years old and if you have been experiencing pain for more than 3 months. It is also important that you have a good level of English. If you have understood all information given so far, your English proficiency is adequate for this survey.
Do I have to take part in the survey? (Voluntariness of participation)
Your participation is voluntary: This means you do not have to answer any questions if you do not wish to do so. If you do not want to take part, there is no disadvantage to you.
Is there a risk involved if I take part in the survey?
Taking part in the survey does not pose any risks to you. You can stop the survey at any point if you do not want to continue. Just close the browser window. Then, your data will be deleted. You do not need to give a reason if you do not want to to take part or if you stop after you have started to answer.
What will happen with the information I give? (Confidentiality and data retention)
Your answers to this survey are anonymous and confidential. This means we do not collect information that could identify you. It also means that we cannot delete your data after you completed the survey. The data will be used only for scientific analyses. We only report aggregated data. This means that we will look only at groups of people (all people with chronic pain, all women or men, etc.). The data will not be passed on to anyboy else.
Are the data protected?
The anonymous data will be collected on the online platform Unipark. The server is located in Bremen, Germany. The server is protected reliably from external access. The BSI-certified data center is subject to extremely high data protection and security requirements according to ISO 27001 based on IT-Grundschutz (baseline protection). No IP addresses will be recorded. Once the survey is complete, the data will be deleted from the provider's server. The electronic data obtained from this survey will be stored securely at the Department of Psychology at the University of Marburg, Germany. It will be confidential, only the investigators will have access to the data. After 10 years, all data will be deleted. The data will be used exclusively for scientific data analyses, they will not be passed on to any kind of third party.
Can I learn about the results? (Study results)
Yes! We will analyze the data and prepare for scientific publications and conferences. We will also write a summary that you can access via the PAE.
Who can I contact if I have questions about the study? (Principal investigator and contact details)
Please contact the investigators if you have any concerns or questions about this survey:
PD Dr. Antonia Barke (principal investigator) & Beatrice Korwisi, M. Sc. (co-investigator)
Clinical Psychology and Psychotherapy
University of Marburg